Spring Fling: San Diego 2011
Sunny San Diego didn’t live up to its name, but a great Spring Fling meant demos and discussion on four contrasting themes, including Exercise, Prevention & Food, Research, and Cheaper Care Delivery. There was also the introduction of the daisy-chain Fireside Chats and lots of focus on pregnancy and childbirth–especially with Indu & Matthew both expecting within a month.
Pre-Conference: HealthCamp San Diego
HealthCamp San Diego 2011 was hosted at the Rady School of Management on the beautiful campus of UC San Diego. HealthCamp is a collaborative experience designed to create ‘open space’ for learning, collaboration and creative expression.
Patients 2.0 Working Group
This meeting continued the dialogue started at the San Francisco Conference in October 2010, which brought together over 100 patients and advocates who shared stories about being patients while using, sharing, and co-creating health data. That meeting resulted in a Patients 2.0 manifesto to Recognize Our Impact (ROI) for disruptive innovation— as patients who have a stake in their own, as well as fellow patients’ health and health care.
The conclusion of the San Francisco meeting was the development of seven guidelines we must follow if we wish to dramatically change the health system:
1. Engage emotionally AND analytically
2. Let patients control their own data (and add to it)
3. Include the patient’s voice in decision-making (care, development, policy)
4. Engage people and provide services wherever they are
5. Recognize all stakeholders – patients, caregivers, and providers –
as equal partners with different roles
6. Network everyone, including those who aren’t online
7. Here’s the real ROI: Recognize Our Impact.
At this 2-hour meeting, we reviewed the seven Patient 2.0 tenets, and brainstormed themes and ideas to move toward. This event was free of charge to patients and Health 2.0 Conference attendees.
Take a Tour: West Wireless Health Institute
Founded by Gary & Mary West, the WWHI is a major new player not only in San Diego, but also nationally. WWHI is working with the VA and many other institutions to promote innovation, but also spending its own money on new applications and devices—all intended to make quality health care both more ubiquitous and cheaper. The senior leadership (including President Don Casey and Chief Medical Officer Joe Smith showed the facility, presented what they were up to, and hosted a meet-and-greet session.
Kaiser Permanente Garfield Specialty Care Center
While KP needs no introduction, you may not know that in San Diego i) they’ve been working on exchanging data from their HealthConnect system with the VA, ii) are part of the San Diego Beacon community, and iii) opened a new specialty care center the prior September. Our friends at KP, including Permanente’s S. California CMIO John Mattison, hosted a tour of the center and showed a demo of HealthConnect and some of that data interoperability.
Health 2.0 101
New to Health 2.0? Confused about what this Web 2.0 stuff is and what it’s got to do with healthcare? Don’t understand “unplatforms”? Can’t identify a data utility layer? Want a refresher on the 4 stages of Health 2.0? Want to know what happened to “user-generated healthcare”? All topics were covered in this jam-packed session.
Matthew & Indu will give a version of the longer keynote addresses they give to audiences outside of Health 2.0 conferences to catch you up!
The Opening Night Curtain Raiser
Indu & Matthew kick-offed the conference by introducing the three themes of:
Making health care cheaper
The evolution of research
Prevention, wellness, exercise & food
They started the conversation and the controversy with several key players, and introduce a couple of “timely” issues.
And in a first for Health 2.0, we started a series of Fireside Chats using a chain of interviewers and interviewees:
Matthew Holt of Health 2.0 talks to Alan Greene about, Whiteout, his new campaign to remove white rice cereal from infant diets. Then Alan and Abbe Don, IDEO discuss Abbe’s personal journey to have a healthy lifestyle through an immersion program at the Pritkin institute.
New Data Models
Abbe then interviews Stephen Downs, Robert Wood Johnson Foundation on the importance of design in healthcare and the recording of “activities of daily living”.
Stephen then talks to Nikolai Kirienko, Crohnology.MD one of Project HealthDesign’s grantees on a mind-blowing personal story of how capturing data via patient narrative saved his life.
Pregnancy and Health 2.0
J.D. Kleinke and Amy Romano, Childbirth Connection talked about J.D.’s new book Catching Babies, where the field of OB/GYN serves as a microcosm for debates in the wider healthcare system.
Amy then discussed with Indu Subaiya of Health 2.0 about the data- and emotion-driven decisions she faced about her upcoming event.
Opening Night Party
Wellness 2.0, Prevention, Exercise & Food
One area where Health 2.0 technologies show great promise and some early market penetration is in tools for wellness. Employers, consumers, and even Medicare are paying for programs and services that don’t look like traditional medical care, but may have great benefits. But in a world in which the food supply, and the physical and social environment seem to be programming us for obesity, what can the Health 2.0 community do? We took a closer look at how Health 2.0 tools can become part of the fabric for better micro-and macro-decisions about food and healthy behaviors, with a special focus on how we can make a real contribution to ending childhood obesity.
Break & Deep Dive
The Future of Research
The emergence of user-generated content, and the rise of patient involvement in Health 2.0 is radically changing research in both discovery and clinical practice. It’s raising important questions. What is peer review? What is evidence? And what’s appropriate methodology in a world in which data are being generated and released from so many diverse sources so quickly? We looked across the spectrum from genomics to clinical trial recruiting all the way to clinical research and decisions made by providers and consumers in everyday practice.
Lunch, with Calit2
During the lunch, Dr. Koh, Mr. Park, and other HHS staff introduced the national health communication and health IT priorities for the next decade and challenged the health IT developer community to build applications that will help the United States reach our Healthy People 2020 goals and objectives. The purpose is to share ideas about how to use these objectives to inform app development and to track and advance their impact on health.
Making Health Care Cheaper
Inspired by a keynote we heard some time back from Mark Smith at California Health Care Foundation, and by the work of organizations such as West Wireless Health Institute, we pushed the envelope on how Health 2.0 technologies and the companies using them can actually lower the cost of health care. We showed new models for care delivery, new Health 2.0 technologies that reduce costs, and new technology models that take advantage of lightweight tools and rapid cycles for development and deployment. We also addressed alternate funding models that are tailored for a lower cost, faster and more iterative approach in health technology innovation.
How are We Going to Make a Difference?
For more than a day the discussion had been about how health care can be cheaper, how Health 2.0 can advance research, and what to do about our national (and international) crisis with lifestyle-induced disease. In the final session, some key players discussed their vision for the future of health care, and the role Health 2.0 will play.