Ben Heywood, CEO, PatientsLikeMe | America
Ben founded PatientslikeMe with brother Jamie and friend Jeff Cole, when his brother Stephen was suffering from ALS. The family’s remarkable story was captured in the documentary So Much So Fast. PatientslikeMe has since expanded from ALS to many other conditions, and now has over 45,000 patients sharing information in a radically open way. Many of these patients are involved in ongoing studies such as their new community research venture into Epilepsy with uCb.