PatientsLikeMe: The New Environment for Better Health Care Decisions

Jamie Heywood founded PatientslikeMe with brother Ben and friend Jeff Cole when brother Stephen was suffering from ALS. The family’s remarkable story was captured in the documentary So Much So Fast. PatientslikeMe has since expanded from ALS to many other conditions, and now has over 45,000 patients sharing information in a radically open way. Jamie demonstrated the new Open Research Exchange platform, which shows various studies informing patients of treatments which work and gives more information into those conditions.